Practical guidance.
A team you can call.

When to call the hospice nurse

• New or worsening pain, shortness of breath, agitation, nausea, vomiting, bleeding, fever, or confusion
• A fall, injury, medication concern, or sudden change in alertness
• Difficulty giving medication, food, fluids, or personal care
• Any time you are uncertain, worried, or feel the current plan is not working

For an immediate medical emergency, call 911. Enrolled families should also notify the hospice team.

Medication and symptom safety

• Follow the current hospice medication instructions exactly.
• Do not start, stop, crush, or change a dose unless directed by an authorized clinician.
• Keep an updated medication list and note when as-needed medication is given.
• Store medications safely and away from children or visitors.
• Call hospice if a medication is unavailable, refused, vomited, or does not appear effective.

Falls and home safety

• Keep walking paths clear and provide good lighting.
• Use ordered equipment and assistance for transfers and walking.
• Keep frequently used items within reach.
• Do not attempt an unsafe lift by yourself.
• Call hospice after any fall, even when there is no obvious injury.

Caregiver stress and respite

• Tell the team when caregiving feels physically or emotionally overwhelming.
• Accept help with meals, errands, companionship, or household tasks when available.
• Use brief rest periods and share responsibilities when possible.
• Ask the social worker about community resources and respite options.
• Call hospice before exhaustion becomes a crisis.

Common changes near the end of life

Some people experience increased sleeping, reduced appetite or thirst, weakness, less communication, changes in breathing, cool hands or feet, restlessness, or changes in urine output. These changes vary by person.

Call the hospice nurse for guidance. Do not force food or fluids. Focus on comfort measures recommended by the care team.

When death occurs

For an expected death at home, call Charity Hospice Care. The nurse will guide the family, make the required visit, contact the appropriate physician and mortuary, and explain the next steps.

There is no need to manage the process alone. If the death is unexpected or the person is not enrolled in hospice, call 911.

Grief and bereavement

Grief can affect sleep, concentration, appetite, energy, relationships, and daily routines. There is no single correct way or timeline to grieve.

Charity Hospice Care offers bereavement education, supportive outreach, and resources for loved ones before and after a death.